About the Sitosterolemia Foundation
The Sitosterolemia Foundation is a voluntary non-profit organization dedicated to providing support and information to individuals diagnosed with sitosterolemia and thier families
The foundation was established in 2015 under the section 501(c)(3) of the Internal Revenue Code. IRS has determined that the Sitsterolemia Foundation is an officially recognized public charity non- profit organization.
The Foundation's goals are to increase awareness, fund research and provide education resources to patients and medical professionals.
Foundation Board
President and board member: Cyndi Jones
Secretary and board member: Amy Courter
Board member: Don Perkinson
Medical Advisory Board
Peter Jones, PhD
Professor, Canada Research Chair
Department of Human Nutritional Sciences
Director, Richardson Centre for Functional Foods and Nutraceuticals
http://umanitoba.ca/centres/rcffn/index.html
David Mymin, MD
Lipid Clinic, I.H. Asper Institute
CR3100-369 Tache Ave.
Winnipeg, Manitoba Canada R2H 2A6
http://www.umanitoba.ca/medicine/units/cardiac_sciences/news.htm
Ambika Ashraf MD
Associate Professor of Pediatrics
Div. of Pediatric Endocrinology
Children’s of Alabama, University of Alabama at Birmingham
Birmingham, AL-35233
Eric Bruckert, MD
Professor, Chair
Endocrinologie métabolisme et prévention cardiovasculaire
Institut E3M et IHU cardiométabolique (ICAN)
Hôpital Pitié Salpêtrière, Paris, France
http://www.ican-institute.org/
M. John Chapman BSc (Hons), PhD, DSc, FESC
Research Professor, University of Pierre and Marie Curie,
Director Emeritus, INSERM,
Past-President, European Atherosclerosis Society,
Pitié-Salpêtrière University Hospital,
Paris, France
http://www.upmc.fr/en/index.html
Sergio Fazio, MD, PhD
The William and Sonja Connor
Chair of Preventive Cardiology
Professor of Medicine and Physiology & Pharmacology
Director, Center for Preventive Cardiology
Knight Cardiovascular Institute
Oregon Health and Science University
Portland, OR
Semone B. Myrie, RD, PhD
Assistant Professor
Department of Human Nutritional Sciences
University of Manitoba
110-196 Richardson Centre for Functional Foods
Winnipeg, Manitoba
http://umanitoba.ca/centres/rcffn/index.html
Jean-Baptiste Roullet, PhD
Clinical Professor
Experimental & Systems Pharmacology
Washington State University, College of Pharmacy
PO Box 1495
Spokane, WA