About the Sitosterolemia Foundation

The Sitosterolemia Foundation is a voluntary non-profit organization dedicated to providing support and information to individuals diagnosed with sitosterolemia and thier families

 

The foundation was established in 2015 under the section 501(c)(3) of the Internal Revenue Code. IRS has determined that the Sitsterolemia Foundation is an officially recognized public charity non- profit organization.

 

The Foundation's goals are to increase awareness, fund research and provide education resources to patients and medical professionals. 

 

 

Foundation Board

 

President and board member: Cyndi Jones

 

Secretary and board member: Amy Courter

 

Board member: Don Perkinson

 

 

 

Medical Advisory Board

 

Peter Jones, PhD

Professor, Canada Research Chair

Department of Human Nutritional Sciences

Director, Richardson Centre for Functional Foods and Nutraceuticals

http://umanitoba.ca/centres/rcffn/index.html

 

David Mymin, MD

Lipid Clinic, I.H. Asper Institute

CR3100-369 Tache Ave.

Winnipeg, Manitoba Canada R2H 2A6

http://www.umanitoba.ca/medicine/units/cardiac_sciences/news.htm

 

Ambika Ashraf MD

Associate Professor of Pediatrics

Div. of Pediatric Endocrinology

Children’s of Alabama, University of Alabama at Birmingham

Birmingham, AL-35233

http://www.uab.edu/home/

 

Eric Bruckert, MD

Professor, Chair

Endocrinologie métabolisme et prévention cardiovasculaire

Institut E3M et IHU cardiométabolique (ICAN)

Hôpital Pitié Salpêtrière, Paris, France

http://www.ican-institute.org/

 

M. John Chapman BSc (Hons), PhD, DSc, FESC

Research Professor, University of Pierre and Marie Curie,

Director Emeritus, INSERM,

Past-President, European Atherosclerosis Society,

Pitié-Salpêtrière University Hospital,

Paris, France

http://www.upmc.fr/en/index.html

 

Sergio Fazio, MD, PhD

The William and Sonja Connor 

Chair of Preventive Cardiology

Professor of Medicine and Physiology & Pharmacology

Director, Center for Preventive Cardiology

Knight Cardiovascular Institute

Oregon Health and Science University

Portland, OR

http://www.ohsu.edu/xd/

 

Semone B. Myrie, RD, PhD

Assistant Professor

Department of Human Nutritional Sciences

University of Manitoba

110-196 Richardson Centre for Functional Foods

Winnipeg, Manitoba

http://umanitoba.ca/centres/rcffn/index.html

 

Jean-Baptiste Roullet, PhD

Clinical Professor

Experimental & Systems Pharmacology

Washington State University, College of Pharmacy

PO Box 1495

Spokane, WA

http://www.pharmacy.wsu.edu/