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About the Sitosterolemia Foundation

The Sitosterolemia Foundation is a voluntary non-profit organization dedicated to providing support and information to individuals diagnosed with sitosterolemia and thier families


The foundation was established in 2015 under the section 501(c)(3) of the Internal Revenue Code. IRS has determined that the Sitsterolemia Foundation is an officially recognized public charity non- profit organization.


The Foundation's goals are to increase awareness, fund research and provide education resources to patients and medical professionals. 



Foundation Board


President and board member: Cyndi Jones


Secretary and board member: Amy Courter


Board member: Don Perkinson




Medical Advisory Board


Peter Jones, PhD

Professor, Canada Research Chair

Department of Human Nutritional Sciences

Director, Richardson Centre for Functional Foods and Nutraceuticals


David Mymin, MD

Lipid Clinic, I.H. Asper Institute

CR3100-369 Tache Ave.

Winnipeg, Manitoba Canada R2H 2A6


Ambika Ashraf MD

Associate Professor of Pediatrics

Div. of Pediatric Endocrinology

Children’s of Alabama, University of Alabama at Birmingham

Birmingham, AL-35233


Eric Bruckert, MD

Professor, Chair

Endocrinologie métabolisme et prévention cardiovasculaire

Institut E3M et IHU cardiométabolique (ICAN)

Hôpital Pitié Salpêtrière, Paris, France


M. John Chapman BSc (Hons), PhD, DSc, FESC

Research Professor, University of Pierre and Marie Curie,

Director Emeritus, INSERM,

Past-President, European Atherosclerosis Society,

Pitié-Salpêtrière University Hospital,

Paris, France


Sergio Fazio, MD, PhD

The William and Sonja Connor 

Chair of Preventive Cardiology

Professor of Medicine and Physiology & Pharmacology

Director, Center for Preventive Cardiology

Knight Cardiovascular Institute

Oregon Health and Science University

Portland, OR


Semone B. Myrie, RD, PhD

Assistant Professor

Department of Human Nutritional Sciences

University of Manitoba

110-196 Richardson Centre for Functional Foods

Winnipeg, Manitoba


Jean-Baptiste Roullet, PhD

Clinical Professor

Experimental & Systems Pharmacology

Washington State University, College of Pharmacy

PO Box 1495

Spokane, WA














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