Supporting families and individuals with Sitosterolemia

 

Sitosterolema Foundation is a non-profit organization dedicated to supporting families, individuals and professionals dealing with Sitosterolemia, a rare sterol disease. By providing a network of ongoing communication, funding related research, and raising awareness, we are committed to enhancing the quality of life of affected individuals while improving on current treatment methods.

 

 

 

 

 

 

Useful Links 

 

 

 Sterol and Isoprenoid Research Constortium

 

 

 

Eunice Kennedy Striver National Institute of Child Health and Human Development 

 

 

 

Genetic and Rare Disease Information Centre (GARD)