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Supporting families and individuals with Sitosterolemia
Sitosterolema Foundation is a non-profit organization dedicated to supporting families, individuals and professionals dealing with Sitosterolemia, a rare sterol disease. By providing a network of ongoing communication, funding related research, and raising awareness, we are committed to enhancing the quality of life of affected individuals while improving on current treatment methods.
Useful Links
Sterol and Isoprenoid Research Constortium
Eunice Kennedy Striver National Institute of Child Health and Human Development
Genetic and Rare Disease Information Centre (GARD)
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